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Member details for mamofMia

Last updated: 25 Nov 2006
 

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mamofMia
Family type: Two parent family
Siblings: 4
Disabled siblings: 1
Aug 2005 Female
Relationship: Mother
Conditions:
Cardiofaciocutaneous syndrome (14)
Noonan syndrome (56)
Brief summary: My daughter has since she was born in august 2005 been crying and been in pain for many hours every dayAnd she has had severe feeding problems Now the doctors think that she has cfc-syndrome

Location: Norway
Languages spoken: english
Member since: 25 Nov 2006
Full story:
My daughter has alot of pains, she cries for many hours a day and she is very difficult to feed. So now she is smaller than other children her age and she is after other children in developement. The doctors do not now what to do to take away her pains or to help her not womit her food. We are so frustreited not to be able to help her. What can we do to help her?

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