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Member details for handysandy

Last updated: 15 Jan 2007

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Family type: Two parent family
Siblings: 1
Disabled siblings: 0
Oct 1994 Female
Relationship: Mother
Conditions: Cardiofaciocutaneous syndrome (14)
Brief summary: lauren was recently diagnosed with cfc after living with the noonans syndrome diagnosis for 5 years we would love to be able to talk to other parents of cfc children

Location: England
Languages spoken: english
Member since: 15 Jan 2007
Full story:
basically we would love to hear from other parents in our position as we know little about this syndrome. lauren has the feeding problems, she does not talk properly, cant walk (in wheelchair), still in nappies also has secondry autism, has developement delay and attends a special school.

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