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Searching on "Leicestershire"

96 people found, showing 1 to 25

To save room on the page we use the term disabled to indicate those with disabilities, special need or a medical condition.
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22q11 Deletion syndromes

Jan 2008  male
Family type: single parent family
Siblings: 4
Disabled siblings: 0
Username: sarah jane
Relationship: Mother
Location: Leicestershire
Other conditions: None

Last updated: 17 Jan 2009
Brief summary: 15q deletion, 25 percent hearing loss, diversonal squint, small for his gestation,undesending testies, suffers from reflux so is tube fed awaitng a op to put tube in to his stomach. is on lots of medicines, always has chest infections and eye infections.

Achondroplasia

Sep 2007  female
Family type: two parent family
Siblings: 1
Disabled siblings: 0
Username: beanyj
Relationship: Mother
Location: Leicestershire
Other conditions: None

Last updated: 26 Jan 2008
Brief summary: smiley happy little bundle of joy with achon.

Acute Disseminated Encephalomyelitis

Jan 2006  male
Family type: not given
Siblings: 2
Disabled siblings: 0
Username: bekst1
Relationship: Mother
Location: Leicestershire
Other conditions: None

Last updated: 29 Jan 2009
Brief summary: toby came down with ADEM on 14th jan 09

Oct 1998  male
Family type: two parent family
Siblings: 1
Disabled siblings: 0
Username: Mysti2009
Relationship: Mother
Location: Leicestershire
Other conditions: None

Last updated: 23 Sep 2016
Brief summary: My son is still in hospital after a week of symptoms where he has been treated for encephalitis and viral meningitis. Finally after second MRI diagnosed yesterday with ADEM. He is 18 very soon and had everything going for him. What now? What can we expect

Alexander disease

Jun 2011  male
Family type: two parent family
Siblings: 0
Disabled siblings: 0
Username: NK2011
Relationship: Parent
Location: Leicester City
Other conditions: None

Last updated: 09 Apr 2014
Brief summary: I am the parent of a wonderful boy who was diagnosed with Alexanders Disease in early 2013, a few months before he turned 2. He has major development delays, ng feeding, seizures but is such an amazing happy boy.

Allergies

Aug 1995  female
Family type: two parent family
Siblings: 4
Disabled siblings: 0
Username: honeyhoney
Relationship: Mother
Location: Leicestershire
Other conditions: Hydrocephalus (118)

Last updated: 14 Mar 2008
Brief summary: We first came into contact with this treasure at 14mths old when we fostered her, the only thing she had in full working order was a smile! She is now 12yrs old, was in mainstream schooling till she was 10, since then "homeschooled" & has come on in

Angelman syndrome

Dec 1963  female
Family type: two parent family
Siblings: 1
Disabled siblings: 0
Username: Angelmum
Relationship: Mother
Location: Leicestershire
Other conditions: None

Last updated: 24 Jun 2007
Brief summary: My daughter is 43 and has just been diagnosed with Angelman's after many years struggling wuith the label 'mentally handicapped'. I'm her mum !

Jul 2012  male
Family type: two parent family
Siblings: 1
Disabled siblings: 0
Username: sparky1999
Relationship: Mother
Location: Leicestershire
Other conditions: None

Last updated: 04 Apr 2014
Brief summary: My son has just been diagnosed with angelsman. very much shocked by the news. would be great to speak to others

Assisted Ventilation

Apr 2005  male
Family type: two parent family
Siblings: 0
Disabled siblings: 0
Username: Entersandman
Relationship: Mother
Location: Leicestershire
Other conditions: None

Last updated: 01 May 2009
Brief summary: I am a very proud mummy to a fab little boy. Our little star is four years old. He has a very rare chromosome disorder and has very complex medical needs. He is fed through a gastrostomy, he has central and obstructive apneas and he is on c-pap at night.

Attention Deficit Hyperactivity disorder

Aug 2000  male
Family type: two parent family
Siblings: 5
Disabled siblings: 1
Username: exhausted101
Relationship: Mother
Location: Leicestershire
Last updated: 18 Mar 2012
Brief summary: We are looking for help into getting our son diagnosed with something. We have read lots on ADHD ODD CD but the child mental health team has put his behaviour down to my parenting and the fact i was abused as a child. No one will listen to us, please help

Mar 2014  female
Family type: single parent family
Siblings: 2
Disabled siblings: 0
Username: HailiesMum
Relationship: Mother
Location: Leicestershire
Other conditions: None

Last updated: 27 Mar 2014
Brief summary: Single mum of 3, 1 child with adhd

Aug 2004  male
Family type: single parent family
Siblings: 0
Disabled siblings: 0
Username: hyperactive
Relationship: Mother
Location: Leicestershire
Last updated: 17 May 2009
Brief summary: mum with ADHD,5 year old son, poss ODD/ADHD.currently recieve no help for my ADHD,awaiting referal/support for my sons behaviours.

Auditory Neuropathy

Oct 2005  male
Family type: single parent family
Siblings: 1
Disabled siblings: 0
Username: staceyp
Relationship: Mother
Location: Leicestershire
Other conditions: Deafness (64)

Last updated: 18 Sep 2007
Brief summary: my son was diagnosed with an hearing impairment at 2mths old and had to wear hearing aids,tnen at14mths old was diagnosed with auditory neuropathy

Autistic Spectrum disorders including Aspergers syndrome

Nov 2008  male
Family type: two parent family
Siblings: 2
Disabled siblings: 0
Username: bailey75a
Relationship: Mother
Location: Leicestershire
Last updated: 27 Jun 2014
Brief summary: My son is being assessed for PDA, we have full support of one professional but another has no understanding of the condition and tells us its not a recognised condition. we desperately need help and advice.

Mar 1995  male
Family type: two parent family
Siblings: 2
Disabled siblings: 0
Username: fiesta
Relationship: Mother
Location: Leicestershire
Other conditions: None

Last updated: 04 Feb 2007
Brief summary: my son has autism and attends a special school in Leicestershire having previously attended a autism unit attached to a main stream primary school. he still wears nappies as he has a leaky gut which means his bowels are soft and he has constant seepage.

Nov 1990  male
Family type: single parent family
Siblings: 2
Disabled siblings: 0
Username: jasmine
Relationship: Mother
Location: Leicestershire
Other conditions: None

Last updated: 06 May 2006
Brief summary: I am the mother of 3 children, one being a 15 year old boy with Asperger's syndrome.

Jul 1995  female
Family type: single parent family
Siblings: 0
Disabled siblings: 0
Username: jules95
Relationship: Mother
Location: Leicestershire
Last updated: 14 Nov 2007
Brief summary: Daughter has General Development Delay (Dyspraxia, Dyslexia, ADD - Autistic Spectrum Disorder).

Mar 1992  male
Family type: single parent family
Siblings: 1
Disabled siblings: 0
Username: neroli
Relationship: Mother
Location: Leicestershire
Other conditions: None

Last updated: 04 Jul 2005
Brief summary: My son was originally diagnosed with high-functioning autism but now described as aspergers syndrome. He's at residential school during the week.

Mar 2002  male
Family type: two parent family
Siblings: 1
Disabled siblings: 1
Username: TnTmum
Relationship: Mother
Location: Leicestershire
Last updated: 26 Aug 2013
Brief summary: Hi, I have an 11 year old by who is diagnosed with ADHD, high functioning autism, OCD, anxiety and depression. I also have a 9 year old son who is diagnosed With ADHD too and is undergoing diagnosis for Asperger's syndrome.

Oct 2010  male
Family type: not given
Siblings: 0
Disabled siblings: 0
Username: Twinkletoes
Relationship: Mother
Location: Leicestershire
Other conditions: None

Last updated: 18 May 2016
Brief summary: Hello my son 5 and has been diagnosed with autism spectrum disorder for a few years now. I want to meet other parents and I'd love to hear from anyone. X

Nov 2003  male
Family type: two parent family
Siblings: 1
Disabled siblings: 0
Username: Twins Mum
Relationship: Mother
Location: Leicestershire
Other conditions: None

Last updated: 19 Sep 2007
Brief summary: Mum to twin boys aged 3. 1 has Austism and ADHD, loving little boy but very busy and lots of sensory needs. Trying out best to keep up with him !! Love hear from anyone.

Apr 2000  male
Family type: two parent family
Siblings: 2
Disabled siblings: 0
Username: zappashouse
Relationship: Mother
Location: Leicestershire
Other conditions: None

Last updated: 29 Sep 2005
Brief summary: My son was diagnosed with Asperger's Syndrome recently. He is in a mainstream primary school without a statement. Would love to hear from anyone with AS children, epecially regarding mainstream education.

Brain Tumour

Jul 2000  male
Family type: two parent family
Siblings: 1
Disabled siblings: 1
Username: purple6
Relationship: Mother
Location: Leicestershire
Last updated: 01 Nov 2012
Brief summary: I have 2 sons aged 9 and 12, the older son was diagnosed with a brain tumour in July 2008, my younger son has visual problems, a bowel disorder and we are awaiting a diagnosis for aspergers.

Cardiomyopathies

Jul 2008  male
Family type: two parent family
Siblings: 2
Disabled siblings: 0
Username: bubblemum
Relationship: Mother
Location: Leicestershire
Last updated: 15 Feb 2009
Brief summary: healthy at birth, contracted virus, viral myocarditis at 8 days ICU, dilated cardiomyopathy, tracheostomy 10 weeks, 24 hour ventilation. tube fed. Older Brother Hearing aids Sister food allergies/eczema

Cataracts

Jan 2008  male
Family type: two parent family
Siblings: 5
Disabled siblings: 1
Username: sarnik
Relationship: Mother
Location: Leicestershire
Other conditions: None

Last updated: 06 May 2009
Brief summary: my son has a cataract we are a close family and our devastated he will have to deal with this at such a young age.

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