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Epilepsy thumbnail of directory

301 people found, showing 1 to 25

To save room on the page we use the term disabled to indicate those with disabilities, special need or a medical condition.
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Aberdeenshire ( Scotland )

Jul 2008  male
Family type: single parent family
Siblings: 0
Disabled siblings: 0
Username: familygirl33
Relationship: Mother
Last updated: 23 Mar 2014
Brief summary: My son is 5 years old. He has Cerebral palsy and a learning disability. He also has epilepsy.

Jul 2011  female
Family type: two parent family
Siblings: 0
Disabled siblings: 0
Username: Klw5268
Relationship: Mother
Other conditions: None

Last updated: 07 Mar 2014
Brief summary: My daughter was diagnosed with Epilepsy at 10 months but we are still in the process of getting a diagnosis of the type of epilepsy.

Americas

Jun 2003  male
Family type: two parent family
Siblings: 3
Disabled siblings: 1
Username: froggie99705
Relationship: Mother
Last updated: 31 Mar 2008
Brief summary: i am a sahhsm to four dc two of whom are missing their cc.

Angus ( Scotland )

Jul 2003  female
Family type: two parent family
Siblings: 0
Disabled siblings: 0
Username: duffer
Relationship: Mother
Last updated: 23 Oct 2008
Brief summary: 5 year old with multiple types of seizures-status epilepticus,grand mal,absence,temporal lobe-also mild dyspraxia and delayed development. Aim is to connect to share experiences of anxiety (parental), behavioural issues and diagnosis.

Mar 2010  female
Family type: single parent family
Siblings: 4
Disabled siblings: 2
Username: shaz2006
Relationship: Mother
Last updated: 10 Dec 2011
Brief summary: Two of my children have epilepsy, my son never walked tell he was two and my daughter is 21 months and still not walking, both have allergy to dairy, one of them also has wheat gluten and eggs allergy and a condition called x-linked ichthyosis.

Antrim ( Northern Ireland )

Apr 1998  male
Family type: single parent family
Siblings: 1
Disabled siblings: 0
Username: Alexandra29
Relationship: Mother
Last updated: 25 Aug 2011
Brief summary: My son has right hemiplegia, cerebal palsy and epilepsy. He attends a special needs school also as he has moderate learning difficulties. He is fun loving and loves company and has typical boy interests eg football etc. He is also very pleasant and kind

Armagh ( Northern Ireland )

Feb 1988  male
Family type: single parent family
Siblings: 2
Disabled siblings: 0
Username: naddywaddy1
Relationship: Mother
Other conditions: None

Last updated: 13 Nov 2011
Brief summary: My son has epilepsy, he was diagnosed 5yrs ago, He also has some learning difficulties, his epilepsy is quite bad, he had an accident, I cant say too much as the court case will be in december

Australia ( Australasia )

May 2007  male
Family type: two parent family
Siblings: 1
Disabled siblings: 0
Username: aussietom
Relationship: Mother
Last updated: 08 Feb 2008
Brief summary: My son was diagnosed with microcephaly at 1 month. he is now 8 months old and is showing signs of severe developmental delays. he has myoclonic epilepsy, cerebral palsy, cortical vision impairment, hearing loss and a cheeky little personality.

Feb 2006  female
Family type: two parent family
Siblings: 2
Disabled siblings: 0
Username: keiras mum
Relationship: Mother
Last updated: 04 Jan 2009
Brief summary: Born with no heartbeat, no pulse! ..Suffers from Symptomatic Epilepsy, Hypoxic Ischemic Encephalopathy Stage II that affects her language and muscle development. She has Cerebal Palsy in the lower limbs.

Dec 2004  female
Family type: two parent family
Siblings: 1
Disabled siblings: 0
Username: LadyTaurus
Relationship: Mother
Last updated: 23 Feb 2011
Brief summary: Daughter born in 2004 with Cerebellar & Brainstem Hypoplasia. Has global developmental delay, severe sensory integration dysfunction, severe hearing impairment and epilepsy. Started mainstream primary school in 2011, but is struggling. Can pull up to s

Aug 2012  female
Family type: two parent family
Siblings: 0
Disabled siblings: 0
Username: Loving_mummy
Relationship: Mother
Last updated: 04 Apr 2013
Brief summary: Our daughter was born at 30 weeks with grade 4 PVHI, Cystic extensive PVL. Has since been diagnosed with microcephaly, spastic qaidriplegic cerebral palsy and epilepsy. Currently undergoing extensive genetic testing.

Apr 2011  male
Family type: not given
Siblings: 0
Disabled siblings: 0
Username: mumablue
Relationship: Female Family Member
Other conditions: None

Last updated: 28 Apr 2012
Brief summary: Looking to connect with others whose children have Pierpont syndrome.Our little boy has many of the symptoms and we are awaiting testing and results.Love to hear your childs and your own story.Cheers Naomi

Oct 1988  male
Family type: single parent family
Siblings: 1
Disabled siblings: 0
Username: terrihere
Relationship: Mother
Last updated: 26 Apr 2006
Brief summary: My 17 yr old daughter has LGS ,diagnosed at 3yrs old,,we now battle mental health and major behaviourl probs,,,are we alone

Mar 2006  male
Family type: single parent family
Siblings: 1
Disabled siblings: 0
Username: thirtynine
Relationship: Mother
Last updated: 14 Feb 2014
Brief summary: Son has polymicrogyria, epilepsy, global developmental delays, left sided hemiplegia, severe language and behavioural issues.

Sep 2005  female
Family type: two parent family
Siblings: 3
Disabled siblings: 0
Username: Tmandjm11
Relationship: Mother
Last updated: 09 Nov 2011
Brief summary: My youngest was diagnosed with cp, epilepsy, microcphley, Polymicrogyria, and global developmental delay in the middle of 2007. I have family and friends that support us but they dont know much or how to as they don't have a child like I do.

Barnet ( London Boroughs )

Jul 2007  not given
Family type: two parent family
Siblings: 0
Disabled siblings: 0
Username: mum2DT
Relationship: Female
Other conditions:
Todd's Paralysis (3)

Last updated: 17 Nov 2007
Brief summary: I am a mum to a 4 and half month old baby boy, who has been having simple partial seizures from sleep for the past month. I would love to hear from other parents who have had a simlar experience.

Bath & NE Somerset ( Somerset )

Jun 2009  female
Family type: two parent family
Siblings: 2
Disabled siblings: 0
Username: RunnerDuck
Relationship: Mother
Other conditions: None

Last updated: 12 May 2015
Brief summary: My daughter has epilepsy, she has frequent complex partial and simple partial seizures, with adversive seizures. We are awaiting the results of genetic tests as glut1 deficiency is suspected.

Birmingham ( West Midlands )

Mar 2000  male
Family type: two parent family
Siblings: 1
Disabled siblings: 0
Username: 3664balbir
Relationship: Mother
Last updated: 14 Jul 2012
Brief summary: not given

Jul 2008  female
Family type: two parent family
Siblings: 3
Disabled siblings: 0
Username: aw3510
Relationship: Mother
Last updated: 17 Apr 2013
Brief summary: My daughter is 3 1/2 and goes to a special needs school. She is a very happy little girl when she is well. She has a Dandy Walker Cyst, epilepsy, apnea, hypotonia, glaucoma, cateracts, chronic lung disease and is deaf and blind.

May 2006  female
Family type: two parent family
Siblings: 2
Disabled siblings: 0
Username: mazie86
Relationship: Mother
Last updated: 23 Jan 2014
Brief summary: my daughter has learning disabilities she has epilepsy she has a short concentration span and she has problems with her coordination

Feb 2011  male
Family type: two parent family
Siblings: 1
Disabled siblings: 0
Username: suzie2011
Relationship: Mother
Last updated: 02 Nov 2011
Brief summary: im 20 years old and have two little boys one aged 2 and then kaydon whos soon to be one kaydon has many oproblems he has been diagnosed with rubinstein taybi syndrom, epilepsy,2:1 heartblock, premature faltering growth disorder, reflux and vommiting etc

Blackburn with Darwen ( Lancashire )

Nov 2008  male
Family type: two parent family
Siblings: 1
Disabled siblings: 0
Username: JakesMummy16
Relationship: Mother
Last updated: 30 Aug 2011
Brief summary: not given

Bolton ( Greater Manchester )

Dec 2005  male
Family type: two parent family
Siblings: 0
Disabled siblings: 0
Username: rudymoo
Relationship: Mother
Other conditions: XYY syndrome (36)

Last updated: 12 Jun 2012
Brief summary: my 6 yr old son has xyy syndrome and absent seizure epilesy. he also has speech and language and learning difficulties

Bridgend ( Wales / Cymru )

May 2013  male
Family type: two parent family
Siblings: 1
Disabled siblings: 0
Username: Jelliebean
Relationship: Mother
Last updated: 21 Oct 2015
Brief summary: My son is 2 and is currently awaiting diagnosis. He's been diagnosed with epilepsy (he's had 2 intensive care stays with severe seizures), sight problems and development delay. He's currently awaiting Mitrochondrial disease results.

May 2010  male
Family type: two parent family
Siblings: 0
Disabled siblings: 0
Username: PicklesDad
Relationship: Father
Last updated: 11 Jun 2015
Brief summary: She's now 5 and still has a current diagnosis of Lennox-Gastaut Syndrome (LSG). Her current development is still that of a 3 month old baby. Would love to chat to like minded carers.

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