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Silver-Russell syndrome thumbnail of directory

also listed as Asymmetry Dwarfism;Russell-Silver syndrome;Silver's;Russell;Silver

34 people found, showing 1 to 25

To save room on the page we use the term disabled to indicate those with disabilities, special need or a medical condition.
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Americas

Dec 2002  male
Family type: two parent family
Siblings: 0
Disabled siblings: 0
Username: bach12
Relationship: Mother
Last updated: 27 Jan 2010
Brief summary: I have an amazing 7 year old son, Brenden. Brenden is about 25 inches, weighs about 17-18 pds. We live in Texas. He has a rare form of dwarfism called Desbuquious Syndrome. Would like to be in contact with someone that has this form or a family member of

Asia

Apr 1999  male
Family type: two parent family
Siblings: 2
Disabled siblings: 0
Username: motherof3
Relationship: Mother
Other conditions: None

Last updated: 02 Nov 2004
Brief summary: We are a British family, living in Asia. I'm looking to share information and experiences related to having an RS child

Brighton & Hove ( East Sussex )

Nov 2015  female
Family type: two parent family
Siblings: 1
Disabled siblings: 0
Username: Fobull
Relationship: Mother
Other conditions: None

Last updated: 26 Jun 2016
Brief summary: Baby girl born at 35/40 due to IUGR for unknown reason. Weighed 2lb 14oz. Failure to thrive. Genetic tests all negative. Symmetrical and no other issues expect slow growth and weight increase. Most likely diagnosis is Russell Silver.

Cheshire East ( North West )

Jun 1982  female
Family type: two parent family
Siblings: 2
Disabled siblings: 0
Username: beanie07
Relationship: Female - Same Person
Other conditions: None

Last updated: 29 Mar 2007
Brief summary: hi my name is janine i'm 25years old and i have rss i'm 4ft 9inches and have the classic symptoms of rss such as the curved pinkie and the broad forehead,

Jul 1998  male
Family type: two parent family
Siblings: 6
Disabled siblings: 0
Username: Dennis
Relationship: Father
Other conditions: None

Last updated: 18 Jun 2007
Brief summary: small stature learning disabilies failure to put on any weight spots on back t shaped face bent pinkies dimples in buttocks 9 years old just diagnosed with rss

East of England Region ( England )

Jan 2012  male
Family type: two parent family
Siblings: 4
Disabled siblings: 0
Username: Danimumto5
Relationship: Mother
Other conditions: None

Last updated: 19 Feb 2014
Brief summary: My baby is having tests for russell silver syndrome

England

Jun 2004  female
Family type: two parent family
Siblings: 2
Disabled siblings: 0
Username: flatpass9
Relationship: Father
Other conditions: None

Last updated: 14 Mar 2007
Brief summary: Have a daughter who has just been diagnosed with RSS. She is 2 years 8 months. She was born 4.95kg, and 49cms long.

Sep 1984  female
Family type: not given
Siblings: 1
Disabled siblings: 0
Username: flowergirl
Relationship: Female - Same Person
Other conditions: None

Last updated: 26 Mar 2007
Brief summary: My name's Hannnah and im a 22 year old RSS adult.

Jun 1996  female
Family type: single parent family
Siblings: 1
Disabled siblings: 0
Username: melisamantha
Relationship: Mother
Other conditions: None

Last updated: 01 Dec 2004
Brief summary: melissa has russell silver syndrome, she was born prematurely at 1lb 11oz she has a double curved spine, astma, she is partialy deaf and has sight problems.

Apr 2009  male
Family type: two parent family
Siblings: 3
Disabled siblings: 0
Username: pinklady277
Relationship: Mother
Other conditions:
Poland syndrome (6)

Last updated: 19 Sep 2013
Brief summary: My son has been diagnosed with Russell Silver Syndrome and Poland Syndrome

Mar 2005  female
Family type: two parent family
Siblings: 1
Disabled siblings: 0
Username: stevecarol
Relationship: Father
Other conditions: None

Last updated: 11 Apr 2008
Brief summary: our 3 year old daughter just diagnosed with rss.

Mar 2004  female
Family type: two parent family
Siblings: 2
Disabled siblings: 0
Username: syndrome
Relationship: Mother
Other conditions: None

Last updated: 09 Sep 2004
Brief summary: My daughter has Silver Russell Syndrome, and I would like to get in touch with others who have experience of this syndrome.

Finland ( Rest of Europe )

Nov 1974  female
Family type: not given
Siblings: 1
Disabled siblings: 0
Username: little myy
Relationship: Female - Same Person
Other conditions: None

Last updated: 04 Aug 2007
Brief summary: Living with RSS over 30 years. Life is not easy but then again is it for anybody. If you cant reach it crab a chair.

Greater Manchester ( North West )

Jun 2013  female
Family type: two parent family
Siblings: 1
Disabled siblings: 0
Username: sj8813
Relationship: Mother
Other conditions: None

Last updated: 17 Jan 2014
Brief summary: My nearly 7mth old daughter has recently been diagnosed with rss. She has what the genetics call a mosaic type and the full left side of her body is smaller than her right. We live in the north west of england..

Havering ( London Boroughs )

Nov 1994  female
Family type: two parent family
Siblings: 3
Disabled siblings: 0
Username: dotty94
Relationship: Mother
Other conditions: None

Last updated: 17 Jan 2009
Brief summary: hollie is 16 and we have just been told she has rss

Hounslow ( London Boroughs )

Dec 2013  male
Family type: two parent family
Siblings: 5
Disabled siblings: 0
Username: Christmasboy
Relationship: Mother
Other conditions: None

Last updated: 08 May 2015
Brief summary: Had slow growth when pregnant and still have slow weight gain he is nearly 17 months old and only weighs 17.5 pounds.had appointment today and they are testing for RSS after I looked it up on google.

Ireland (Republic of) ( Rest of Europe )

Jul 2003  male
Family type: two parent family
Siblings: 2
Disabled siblings: 0
Username: Alexander
Relationship: Mother
Other conditions: None

Last updated: 25 May 2007
Brief summary: Felt something wrong when pregnant. Son born 2lb 6oz. talapied of foot. didn't respond like other children. He has GDD n just told he may have Russell Silver Syndrome

May 2007  male
Family type: two parent family
Siblings: 2
Disabled siblings: 1
Username: russell
Relationship: Mother
Other conditions: None

Last updated: 24 Mar 2014
Brief summary: My 6 year old son was diagnosed with RSS in 2012 aged 5 years.I would like to make contact with other RSS sufferers or their parents.

location not given

Jan 1968  female
Family type: two parent family
Siblings: 3
Disabled siblings: 0
Username: bumblybee
Relationship: Female Affected Adult
Other conditions: None

Last updated: 27 Jul 2006
Brief summary: I was born in 1968 and have Russell Silver syndrome. I have two healthy teenagers and work part-time.

Dec 1996  female
Family type: two parent family
Siblings: 2
Disabled siblings: 0
Username: StressedMum
Relationship: Mother
Other conditions: None

Last updated: 08 Mar 2005
Brief summary: Adopted three children 5 years ago, one of whom has RSS and is now on growth hormone treatment.

Nov 2012  not given
Family type: two parent family
Siblings: 1
Disabled siblings: 0
Username: Yellow fish
Relationship:
Other conditions:
Desbuquois syndrome (2)

Last updated: 25 Feb 2015
Brief summary: our daughter has desbuquois syndrome and would to hear from anyone else either with the syndrome or a family member

North Lanarkshire ( Scotland )

Jun 2001  male
Family type: two parent family
Siblings: 1
Disabled siblings: 0
Username: plewdall39
Relationship: Mother
Other conditions: None

Last updated: 04 May 2006
Brief summary: RSS boy about to start school - worried about future. Would love to hear from anyone with RSS child.

North West ( England )

Nov 1995  male
Family type: two parent family
Siblings: 2
Disabled siblings: 0
Username: TPBAR15
Relationship: Mother
Other conditions: None

Last updated: 25 Nov 2014
Brief summary: Hi My son is now 18 and was diagnosed with Russell Silver Syndrome 10 years ago. I am interested in speaking to other families living with this condition.

Northamptonshire ( East Midlands )

Jan 2015  male
Family type: two parent family
Siblings: 1
Disabled siblings: 0
Username: Spag123
Relationship: Mother
Other conditions: None

Last updated: 04 Mar 2015
Brief summary: I have recently had my second child after a difficult pregnancy and he is thought to have silver- russell. He is currently in hospital, weighing 2lbs14 ozs.

Nottinghamshire ( East Midlands )

Oct 2005  female
Family type: two parent family
Siblings: 1
Disabled siblings: 0
Username: maddieanmum
Relationship: Mother
Other conditions: None

Last updated: 14 Mar 2007
Brief summary: my daughter has just been diagonosed with rss would like to speak to people with similar cases

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