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Aplasia Cutis

also listed as Cutis Aplasia Congenita

47 people found, showing 1 to 25

To save room on the page we use the term disabled to indicate those with disabilities, special need or a medical condition.
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Armagh ( Northern Ireland )

Nov 2009  male
Family type: two parent family
Siblings: 2
Disabled siblings: 0
Username: mumto3thomas
Relationship: Mother
Other conditions:
Developmental Delay (240)

Last updated: 08 Oct 2013
Brief summary: Acute aplasia first noticed by myself when having his first bath after birth. Looked like a small hole in the crown of his head. Since then seems to have developed normally until now, major speech delay, displaying what i wonder are austitic traits

Australia ( Australasia )

Feb 2002  male
Family type: two parent family
Siblings: 1
Disabled siblings: 0
Username: Aussiemum
Relationship: Mother
Other conditions:
Adams-Oliver syndrome (27)

Last updated: 03 Sep 2009
Brief summary: My son was born with severe ACC. He was missing a large portion of bone and skin at birth. He is now 7 and still missing part of his bone.

Apr 1987  female
Family type: not given
Siblings: 3
Disabled siblings: 0
Username: esbie87
Relationship: Female - Same Person
Last updated: 11 Jul 2009
Brief summary: not given

Dec 2012  female
Family type: two parent family
Siblings: 1
Disabled siblings: 0
Username: iondene61
Relationship: Mother
Other conditions: None

Last updated: 10 Oct 2014
Brief summary: daughter has aplasia cutis congenita on head where no hair grows out of the three "spots"

Buckinghamshire ( England )

Sep 1997  female
Family type: two parent family
Siblings: 1
Disabled siblings: 0
Username: jellybaby
Relationship: Mother
Other conditions: None

Last updated: 19 Mar 2008
Brief summary: My daughter is 10 and was born with Aplasia Cutis Congenita. No one had ever seen anything like this before and put it down to my pelvis digging into her head. 5 yrs later I discovered from a newspaper article what it is.

Canada ( Americas )

Nov 2007  female
Family type: two parent family
Siblings: 2
Disabled siblings: 0
Username: miss_kt
Relationship: Mother
Other conditions: None

Last updated: 22 Feb 2009
Brief summary: My daughter was born with ACC. She has two spots on the crown where there is scarring.

Cheshire East ( North West )

Oct 2002  female
Family type: not given
Siblings: 2
Disabled siblings: 0
Username: Kegz26
Relationship: Mother
Last updated: 29 Aug 2007
Brief summary: My daughter has been diagnosed with Cerebral Palsy, PVL, and Cutis Aplasia. My daughter has very minimal speech, global developmental delay, poor motor skills, and poor co-ordination & balance.

Derbyshire ( East Midlands )

Apr 1997  female
Family type: two parent family
Siblings: 3
Disabled siblings: 0
Username: olisqueen
Relationship: Mother
Other conditions:
Cleft Lip and/or Palate (32)

Last updated: 18 Jul 2008
Brief summary: I have a hairless lump on my head and can feel ridge in my skull. My daughter was born with a left sided cleft lip and palate,also has cutis aplasia

Ealing ( London Boroughs )

Dec 1959  female
Family type: two parent family
Siblings: 2
Disabled siblings: 2
Username: mrsjones
Relationship: Female Affected Adult
Other conditions: None

Last updated: 11 Dec 2005
Brief summary: I was born with aplasia cutis congenita, as were both my brothers. All are in our forties - untreated for the condition, psychologically unscathed, and we are successful professionals!

England

Aug 2008  female
Family type: two parent family
Siblings: 1
Disabled siblings: 0
Username: lilymaismum
Relationship: Mother
Other conditions: None

Last updated: 03 Mar 2014
Brief summary: not given

Aug 2008  female
Family type: two parent family
Siblings: 1
Disabled siblings: 0
Username: LilysMum
Relationship: Mother
Other conditions: None

Last updated: 14 Jan 2014
Brief summary: Lily was born in 2008 with a small opening on her head, as she was my first born I didn't worry to much about it as the doctors said she would be fine and it was nothing to worry about. Now her development and speech seems to be behind and I'm worried.

Aug 2008  male
Family type: two parent family
Siblings: 4
Disabled siblings: 0
Username: Mumsey
Relationship: Mother
Other conditions:
Adams-Oliver syndrome (27)

Last updated: 27 Dec 2011
Brief summary: My son was born with severe Adams Oliver syndrome. He is missing a very large section of skull, and doesn't have dura that covers the brain. He was also born missing an ankle and foot.

Greater Manchester ( North West )

Oct 2012  male
Family type: two parent family
Siblings: 4
Disabled siblings: 0
Username: Mac lee 24
Relationship: Mother
Other conditions: None

Last updated: 16 Jan 2013
Brief summary: My baby boy was born with a hole in his head about the size of a 20 pence coin. The midwifes were all very confused and couldn't work out what it was but after searching the Internet found it was aplasia cutis congenita.. On discovering this we were then

Jul 2010  female
Family type: two parent family
Siblings: 1
Disabled siblings: 0
Username: Ourgirls2
Relationship: Mother
Other conditions: None

Last updated: 24 Apr 2012
Brief summary: My daughter was born with a heart shaped cut on her head,at birth the midwife had no idea what it was and we were made to feel she was the freak show on the hospital with constant visits of staff asking to look at the cut... See complete story...

Hong Kong ( Asia )

Dec 1995  female
Family type: two parent family
Siblings: 2
Disabled siblings: 0
Username: ambersmom
Relationship: Mother
Other conditions: None

Last updated: 17 Mar 2009
Brief summary: My daughterwas born with aplasiacutis congenita 12 yrs ago. She now also has a low IQ of 60, left sided weakness, severe learning disabilities,and a skull defect. It has been very hard as this condition is so rare,it would be so great to talk to someone e

Ireland (Republic of) ( Rest of Europe )

Nov 2012  female
Family type: two parent family
Siblings: 0
Disabled siblings: 0
Username: irishmammy
Relationship: Mother
Other conditions: None

Last updated: 22 Nov 2013
Brief summary: Mom of one. Baby was born with a wound on the crown of her head that healed immediately.

Nov 1980  male
Family type: not given
Siblings: 2
Disabled siblings: 0
Username: shervie
Relationship: Male - Same Person
Other conditions: None

Last updated: 05 Nov 2009
Brief summary: not given

location not given

Oct 2008  female
Family type: two parent family
Siblings: 2
Disabled siblings: 0
Username: Anoukx9876
Relationship: Parent
Other conditions:
Adams-Oliver syndrome (27)

Last updated: 16 Aug 2009
Brief summary: www.aosupport.org/anouk.htm

May 2005  male
Family type: two parent family
Siblings: 0
Disabled siblings: 0
Username: bubbles101
Relationship: Mother
Last updated: 14 Sep 2005
Brief summary: my son has aplasia cutis congenita/wristdrop on his rifgt arm

Feb 2009  not given
Family type: not given
Siblings: 0
Disabled siblings: 0
Username: eyethian
Relationship:
Other conditions: None

Last updated: 25 Feb 2009
Brief summary: not given

Oct 1980  female
Family type: not given
Siblings: 5
Disabled siblings: 0
Username: mantis
Relationship: Female - Same Person
Other conditions: None

Last updated: 31 Jan 2013
Brief summary: not given

Jul 2010  male
Family type: two parent family
Siblings: 2
Disabled siblings: 1
Username: mom23boys
Relationship: Parent
Other conditions: None

Last updated: 08 Jul 2010
Brief summary: I have an 8 year old born with the same condition and he has had no complications at all. I have a 6 year old with nothing and now a newborn with Aplasia cutis. I am waiting to do an MRI to know the extent of the similar spot on his head. It looks the sam

Nov 1989  female
Family type: single parent family
Siblings: 1
Disabled siblings: 1
Username: RedEyes1689
Relationship: Female - Same Person
Other conditions: None

Last updated: 24 Jun 2008
Brief summary: I am Crystal Boyd, i am 18, and i have Aplasia Cutis. My younger brother also has this disability.

Nov 2009  not given
Family type: not given
Siblings: 0
Disabled siblings: 0
Username: Worriedmom12
Relationship:
Other conditions: None

Last updated: 25 Nov 2009
Brief summary: not given

New Zealand ( Australasia )

Nov 1982  female
Family type: two parent family
Siblings: 2
Disabled siblings: 0
Username: douglas
Relationship: Mother
Other conditions: None

Last updated: 22 May 2015
Brief summary: My daughter was born with a large skull defect. No meninges, skull or scalp at the top of her head. CT scan showed normal brain. Emergency surgery day 28. Scalp flap rotation failed. She now has multiple disabilities.

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There are conditions similar or related to this one that have people listed against them. They are listed below. If there are UK Support groups available, they will be indicated by this G icon. Click this icon to view the list of available support groups.

Condition (also listed as) No. of members Support Group
Actinic Prurigo 5 -
Acute Haemorrhagic Oedema of Infancy (Seidlmayer's disease; Finkelstein's disease; Acute Haemorrhagic Edema of Infancy) 1 -
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Alopecia Mucinosa (Follicular Mucinosis) 0 -
Angiokeratoma 0 -
Atrophoderma Vermiculata 2 -
Buschke Ollendorff syndrome 3 -
Chronic Actinic Dermatitis (photosensitivity dermatitis/actinic reticuloid syndrome (PD/AR)) 4 -
Darier disease 2 -
Hidradenitis Supurativa 1 -
Hopf disease (Acrokeratosis Verruciformis; Acrodermatitis Verruciformis) 0 -
Hyperkeratosis 0 -
Inflammatory Linear Verrucous Epidermal Nevus (ILVEN) 1 -
Keratoderma (Palmoplantar Keratoderma; Greithers syndrome; Hyperkenatosis Keratoderma; Keratosis Palmaris et Plantaris Hereditarium/Unna-Thorst disease; Keratosis Pilaris; Keratosis Pilaris Atrophicus) 4 -
Keratosis Pilaris Atrophicans Facies 1 -
Molluscum Contagiosum 0 -
Naevus Sebaceous (Nevus Sebaceous) 0 -
Panniculitis 0 -
Pemphigus Vulgaris 1 G
Pityriasis Ruba Pilaris 0 -
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Pompholyx 0 -
Pyoderma Gangrenosum 0 -
Steroid (long term use) Induced Skin disorder 0 -
Sweet syndrome (Acute Febrile Neutrophilic Dermatosis; neutrophilic dermatitis) 0 -
Ulerythema Ophyogenes 2 -
X-linked Reticulate Pigmentary disorder (Familial Cutaneous Amyloidosis; Partington Amyloidosis; Partington Cutaneous Amyloidosis; Partington syndrome Type II; Reticulate Pigmentary disorder; X-linked Reticulate Pigmentary disorder with Systemic Manifestations) 0 -

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