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Laryngeal Cleft

also listed as Laryngotracheoesophageal Cleft

13 people found, showing 1 to 13

To save room on the page we use the term disabled to indicate those with disabilities, special need or a medical condition.

 

Australia ( Australasia )

Jun 2001  female
Family type: two parent family
Siblings: 1
Disabled siblings: 0
Username: savannah
Relationship: Mother
Last updated: 17 May 2013
Brief summary: My daughter has acromicric dysplasia

Canada ( Americas )

Jun 2003  female
Family type: two parent family
Siblings: 0
Disabled siblings: 0
Username: Justine
Relationship: Mother
Other conditions: None

Last updated: 09 Aug 2008
Brief summary: Daughter born preemie with laryngeal cleft type 3, asthma, reflux, dysphagia, was on G-tube for 5 years, hearth birth defect.

Lambeth ( London Boroughs )

Dec 2007  male
Family type: two parent family
Siblings: 0
Disabled siblings: 0
Username: bogarden
Relationship: Mother
Last updated: 18 Aug 2008
Brief summary: Opitz G Syndrome. Tracheostomy and Gastrostomy.

location not given

Sep 2008  male
Family type: single parent family
Siblings: 0
Disabled siblings: 0
Username: babylou
Relationship: Parent
Other conditions: None

Last updated: 04 Dec 2010
Brief summary: My son was born in the U.S, in maryland on sept 23rd 2008. He was diagnosed with laryngeal cleft type 1 at 2 weeks old. His cleft was repaired when he was 2 months old at children's hospital in Washington D.C.

Jun 2003  female
Family type: single parent family
Siblings: 0
Disabled siblings: 0
Username: chatouille
Relationship: Mother
Other conditions: None

Last updated: 05 Feb 2006
Brief summary: My daughter was borned with laryngeal cleft, she is still on G-tube and waiting for the open surgery, also has reflux, asthma...

Jan 1999  male
Family type: two parent family
Siblings: 1
Disabled siblings: 0
Username: L2B2L2B2
Relationship: Mother
Last updated: 29 Mar 2005
Brief summary: Our 6 year old son has spasmodic croup, GERD (gastric reflux), and a Type 1 laryngeal cleft. He has severe episodes (always with a cold or upper respiratory virus) of croupy coughing and vomiting -- this can continue for several weeks at a time.

May 2002  female
Family type: two parent family
Siblings: 2
Disabled siblings: 1
Username: SIMPLYRED1
Relationship: Mother
Other conditions: None

Last updated: 30 Sep 2005
Brief summary: My daughter was diagnosed with a laryngeal cleft when she was born. She was tube fed for 10 months and then had an operation to rectify it. She is doing well but has to concentrate still when drinking. She also has bad colds in the winter, croupy soundi

Netherlands / Holland ( Rest of Europe )

Aug 2004  male
Family type: two parent family
Siblings: 0
Disabled siblings: 0
Username: Diegojulian
Relationship: Father
Other conditions: None

Last updated: 18 Jan 2008
Brief summary: Diego Julian is our 3 years old son and has a laryngeal cleft of which he has been operated at the age of 1. We would like to know more about this specific anomalie and future developments. Regards Mark

Torbay ( Devon )

Nov 2006  male
Family type: two parent family
Siblings: 2
Disabled siblings: 0
Username: mattys mum
Relationship: Mother
Other conditions:
Assisted Ventilation (8)

Last updated: 29 Nov 2010
Brief summary: My son is 24 hour ventilated via a tracheostomy. he has severe tracheobroncho malacia. he is a very active child. also a tof child. heart problems. dumping syndrome. nil by mouth all food given vai gastro. autism. and so much more

United States of America ( Americas )

Jan 2006  not given
Family type: two parent family
Siblings: 2
Disabled siblings: 0
Username: hailbysmom
Relationship: Mother
Last updated: 06 Feb 2008
Brief summary: My son was recently diagnosed with laryngeal cleft and laryngopharyngeal reflux after several aspirations and pneumonias. He's been in feeding therapy since he was 4 months.

Feb 1998  not given
Family type: two parent family
Siblings: 1
Disabled siblings: 0
Username: new jersey
Relationship: Mother
Last updated: 09 Sep 2007
Brief summary: be happy to help parent ....my child had laryngeal cleft repair.. tracheostomy..g- tube... now all gone but severe food allergies i am a pro in any of these areas

Dec 2005  male
Family type: single parent family
Siblings: 0
Disabled siblings: 0
Username: PTMOMMA
Relationship: Mother
Last updated: 16 Oct 2007
Brief summary: My son was diagnosed with a Laryngeal Cleft when he was 18-months-old. He has also been diagnosed with severe GERD. When he was just 4 weeks old, he had surgery to correct another birth defect, called a Pyloric Stenosis. He has already had 7 aspiration pn

Warwickshire ( West Midlands )

Feb 2003  male
Family type: two parent family
Siblings: 2
Disabled siblings: 0
Username: worthyju
Relationship: Mother
Last updated: 07 Apr 2009
Brief summary: Opitz G syndrome, Autism Spectrum Disorder, Tracheostomy, tube fed

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